Cancer Survivorship Summit

Date: Monday, October 16, 2023

Time: 9:00am-4:45pm

Location

Nova Southeastern University

Don Taft University Center, Rick Case Arena

3301 College Avenue, Davie, FL 33314

Site Map

Arena Layout

Resource Fair

Mobile Van Location

Registration: Due to security requirements, only confirmed RSVPs will be granted access to the site. Please register at https://www.eventbrite.com/e/rep-wasserman-schultz-cancer-survivorship-summit-tickets-722182305717?aff=oddtdtcreator.

Airport: for those flying in, FLL is about 15-30 min away, and MIA is 45 min to 1 hr away

Parking: There is extremely limited paid parking available a on first-come, first- serve basis at: NSU Library Parking Garage. The parking venue is 200 yards north of the Rick Case Arena at the Don Taft University Center. * Drop-off or the utilization of ride share is encouraged. Please us this address for the closet drop-off spot to the arena: 7200 Mary McCahill Drive, Davie, FL 33314.

Food/Drinks: There will be food available for purchase inside the arena and in the Student Center. Plan accordingly and please be advised that this may take a significant amount of time.

Security: United States Secret Service (USSS) will be handling security on-site. Participants should expect airport-style security, meaning no large bags, umbrellas, signs, or backpacks, etc. will be allowed without prior authorization

For every survivor, cancer will be a very different and personal experience. Cancer survivors are some of the most vulnerable patients in the health care system and their care and the cancer journey do not end once active treatment ends.

With more than 18 million cancer survivors in the United States, and 26 million expected by 2040, the Cancer Survivorship Summit is a collaborative opportunity to shine a light on all those impacted by cancer throughout this journey, and discuss critical gaps in survivorship care, key policy proposals, and providing national, state and community-based resources and support services.

The Summit will provide education and awareness about survivorship; highlight the survivorship journey for survivors, their family members and caregivers, and providers; ensure survivors are not lost along their journey and gain an in-depth understanding of what they will face and how to navigate their diagnosis; offer support through hope and community resources; and bring together like-minded individuals and organizations with the same goals and mission to forge connections and generate collaborative opportunities.

As noted below, the Summit will feature a keynote speaker, panel discussions, presentations and guest speakers, and a resource fair. The event also will host mobile vans available to provide services, and feature video messages from survivors.

Keynote: The Summit will feature a keynote speech from First Lady Jill Biden. Panels: The Summit will feature five panel discussions.

Presentations and Guest Speakers: The Summit will feature several presentations and guest speakers, each focused on a specific topic.

Resource Fair: The Summit will have a Resource Fair ongoing throughout the entire event. The purpose of the Fair is to provide survivors, their families and caregivers, and providers with relevant information about resources in the community, education and awareness, and opportunities for networking and further outreach.

Mobile Vans: The Summit will host mobile units providing services to attendees.

Keynote Speech

The Summit will feature a keynote speech from First Lady Jill Biden.

Panels

The Summit will feature five panel discussions.

Panel 1 - Risk Reduction and Prevention

Purpose: This segment will provide education and awareness that highlights the importance of early detection and preventive care, with an emphasis on breast cancer during Breast Cancer Awareness Month. The segment will also have a strong focus on hereditary cancer, as well as genetic disposition to cancers.

Moderator: Congresswoman Debbie Wasserman Schultz, FL-25

Speakers:

1.    Dr. Crystal Denlinger, National Comprehensive Cancer Network (NCCN)

2.    Dr. Ann H. Partridge, Dana-Farber Cancer Institute

3.    Ricki Fairley, TOUCH The Black Breast Cancer Alliance

4.    Netta N. Apedoe, CDC Division of Cancer Prevention and Control (DCPC)

Panel 2 - Transition to Post-Treatment Care

Purpose: This segment will begin the discussion on the survivorship journey after diagnosis, beginning with a discussion on survivorship care plans. This segment will address care coordination and survivors' expectations and questions when transitioning to post-treatment care. The speakers will discuss the importance of obtaining and using a robust care plan to prevent them from feeling they are “lost in transition,” while discussing quality of care concerns and communication with their care team.

Moderator: Shelley Fuld Nasso, National Coalition for Cancer Survivorship (NCCS)

Speakers:

1.    Dr. Patrick Hwu, Moffitt Cancer Center

2.    Dr. Jonathan D. Licht, University of Florida Health Cancer Center

3.    Dr. Stephen Nimer, University of Miami Sylvester Comprehensive Cancer Center

Panel 3 - Surviving and Thriving: Navigating Survivorship

Purpose: This segment will focus on navigating cancer and considerations for survivors and their families. The discussion will highlight the role of navigators and caregivers, how to obtain their services, and how they are an integral part of the care team. It will also delve into the various concerns survivors may have, such as employment challenges, disruption to education and social life, maintaining health and wellness, and seeking resources and support in the community.

Moderator: Jessica MacIntyre, Oncology Nursing Society (ONS)

Speakers:

1.    Dr. Tara Sanft, Yale Cancer Center

2.    Sue Friedman, FORCE: Facing Our Risk of Cancer Empowered

3.    Dr. Zeina Nahleh, Cleveland Clinic of Florida

4.    Dr. Arif Kamal, American Cancer Society Cancer Action Network (ACS CAN)

Panel 4 - Health Disparities

Purpose: This segment will highlight social determinants of health and their impact on survivors, such as transportation, childcare, housing, homecare, food insecurity, access to broadband, and more. It will highlight health disparities and equity issues that affect certain communities and how this creates barriers to survivorship care.

Moderator: Jelani Murrain, American Cancer Society Cancer Action Network (ACS CAN)

Speakers:

1.    Michelle Clark, Nova Southeastern University

2.    Usha Menon, University of South Florida

3.    Gary Puckrein, National Minority Quality Forum (NMQF)

4.    Farhad Islami, American Cancer Society Cancer Action Network (ACS CAN)

Panel 5 - Childhood and Adolescent Cancer

Purpose: This segment will be focused on childhood and adolescent cancer as these individuals and their families face survivorship in a very different manner. It will highlight the difficulties families and caregivers face with child survivors, discuss the transition to adulthood and care coordination, and delve into accessing preventive services, potential recurrence, as well as other considerations like their education and socialization.

Moderator: Dr. Jennifer McCafferty-Fernandez, Nicklaus Children’s Hospital

Speakers:

1.    Dr. Kerice Pinkney, Joe DiMaggio Children’s Hospital

2.    Steve Wosahla, Children’s Cancer Cause (CCC)

3.    Dr. Minesh Mehta, Miami Cancer Institute

Presentations

The Summit will feature five presentations.

Lung Cancer and Survivorship

Purpose: Although lung cancer remains the leading cause of cancer mortality in individuals in the United States, advances in detection and treatment have increased the likelihood of long-term survival. This segment will delve into survivorship considerations that lung cancer survivors, their families, and caregivers face.

Speaker: Dr. Estelamari Rodriguez, University of Miami Sylvester Comprehensive Cancer Center

Gastrointestinal Cancer and Survivorship

Purpose: The number of gastrointestinal cancer survivors is projected to increase in the coming years, especially in younger populations. This segment will delve into survivorship considerations that gastrointestinal cancer survivors, their families, and caregivers face.

Speaker: Dr. Dan Pambianco, American College of Gastroenterology

Fertility and Family Planning

Purpose: This segment will answer questions young survivors may be wondering about whether and how they can start their family. It will address questions like, 1. Can you get pregnant if you have cancer? 2. Chemotherapy and Radiation; 3. How fertility preservation works for cancer patients; and 4. How to handle the timing of cancer treatments and fertility preservation.

Speaker: Joyce Reinecke, Alliance for Fertility Preservation

Lifestyle Changes (Mental, Physical, and Psychosocial Health)

Purpose: This segment will discuss interventions and considerations that promote a healthy lifestyle and psychosocial health, such as nutrition and increased physical activity, emotional well-being to improve quality of life, overall functioning, and health status for survivors, which assists in reducing the risk for psychosocial concerns, chronic disease, and potentially preventing recurrence, and improve survival.

Speakers: Belinda Paulicin and Kim Praitano, Gilda's Club South Florida

AI in Oncology

Purpose: This segment will transition into advances in cancer detection and treatment, focusing on technological advances in artificial intelligence and its ethical usage in oncological care.

Speaker: Bill Lotter, Dana-Farber Cancer Institute

Guest Speakers 

VA’s Role in Cancer Moonshot
Denis Richard McDonough, U.S. Secretary of Veterans Affairs

Ending Cancer As We Know It: What it Means for Cancer Survivors
Dr. Douglas R. Lowy, Principal Deputy Director, National Cancer Institute

Providing Access and the Continuum of Care 
Amb. Nancy Brinker, Founder of Susan G. Komen and the Promise Fund of Florida

The Caregiver Experience
Martina Navratilova, Professional Tennis Legend
Julia Lemigova, Miss USSR 1990, cast member of The Real Housewives of Miami

 

Video Messages

* Please note that there may be additional videos featured in the program

Deborah Roberts
 ABC News, Television Journalist Co-Anchor, ABC News 20/20

Katie Couric
Television Hall of Fame Inductee and Award-Winning Journalist Best-selling author, co-founder of Stand Up To Cancer (SU2C)

Andrea Mitchell
NBC News Chief Foreign Affairs Correspondent
Host, Andrea Mitchell Reports

“Tell Your Story” Survivor Stories

Doors Open/ Registration Open

Resource Fair Open

Mobile Vans Available

Set 1: Welcome Messages

George L. Hanbury II, President of NSU

Congresswoman Debbie Wasserman Schultz, FL-25

 

Set 2: Risk Reduction and Prevention

Congresswoman Debbie Wasserman Schultz, FL-25

Dr. Crystal Denlinger, National Comprehensive Cancer Network

Dr. Ann H. Partridge, Dana-Farber Cancer Institute

Ricki Fairley, TOUCH The Black Breast Cancer Alliance

Netta N. Apedoe, CDC Division of Cancer Prevention and Control 

 

Transition Break

Special Guest Video Message

 

Guest Speaker Introduction

Congresswoman Debbie Wasserman Schultz, FL-25

 

Set 3: NCI’s Role in Cancer Moonshot

Dr. Douglas R. Lowy, National Cancer Institute 

 

Guest Speaker Introduction

Congresswoman Debbie Wasserman Schultz, FL-25

 

Set 4: VA’s Role in Cancer Moonshot

Denis R. McDonough, U.S. Secretary of Veterans Affairs

 

Keynote Introduction

Congresswoman Debbie Wasserman Schultz, FL-25

 

Set 5: Keynote Speaker

First Lady Jill Biden

 

Transition Break

Special Guest Video Message

 

Set 6: Transition to Post-Treatment Care

Shelley Fuld Nasso, National Coalition for Cancer Survivorship

Dr. Patrick Hwu, Moffitt Cancer Center

Dr. Jonathan D. Licht, University of Florida Health Cancer Center

Dr. Stephen Nimer, University of Miami Sylvester Comprehensive Cancer Center

 

Guest Speaker Introduction 

Congresswoman Debbie Wasserman Schultz, FL-25

 

Set 7: Providing Access and The Continuum of Care 

Amb. Nancy Brinker, The Promise Fund of Florida

 

Lunch Break

Video Messages from Survivors, “Tell Your Story”

 

Set 8: Fertility and Family Planning

Joyce Reinecke, Alliance for Fertility Preservation

  

Set 9: Survive and Thrive: Navigating Survivorship

Jessica MacIntyre, Oncology Nursing Society

Dr. Tara Sanft, Yale Cancer Center

Sue Friedman, FORCE

Dr. Zeina Nahleh, Cleveland Clinic of Florida

Dr. Arif Kamal, American Cancer Society Cancer Action Network

 

Transition Break

Special Guest Video Message

 

Set 10: Lifestyle Changes

Belinda Paulicin, Gilda's Club South Florida

Kim Praitano, Gilda's Club South Florida

 

Set 11: AI in Oncology

Bill Lotter, Dana-Farber Cancer Institute

 

Transition Break

Special Guest Video Message

 

Set 12: Health Disparities

Jelani Murrain, American Cancer Society Cancer Action Network

Michelle Clark, Nova Southeastern University

Usha Menon, University of South Florida

Gary Puckrein, National Minority Quality Forum

Farhad Islami, American Cancer Society Cancer Action Network

Set 13: Lung Cancer and Survivorship

Dr. Estelamari Rodriguez, University of Miami Sylvester Comprehensive Cancer Center

Guest Speaker Introduction 

Congresswoman Debbie Wasserman Schultz, FL-25

Set 14: The Caregiver Experience 

Martina Navratilova, Professional Tennis Champion 

Julia Lemigova, Bravo’s The Real Housewives of Miami

Transition Break

VIP Guest Video Message

Set 15: Gastrointestinal Cancer & Survivorship 

Dr. Dan Pambianco, American College of Gastroenterology

Set 16: Childhood and Adolescent Cancer

Dr. Jennifer McCafferty-Fernandez, Nicklaus Children’s Hospital

Dr. Kerice Pinkney, Joe DiMaggio Children’s Hospital

Steve Wosahla, Children’s Cancer Cause (CCC)

Dr. Minesh Mehta, Miami Cancer Institute

Set 17: Closing Remarks

Congresswoman Debbie Wasserman Schultz, FL-25

Adrienne Arsht Center 

Aging and Disability Resource 

AHEC/Tobacco Free Florida 

American Cancer Society 

American College of Gastroenterology 

American Lung Association 

Baptist Health Cancer Care 

Broward Community & Family Health Centers, Inc. 

BRCAStrong 

Broward County Transit (TOPS) 

Career Source Broward 

Cleveland Clinic 

Debbie’s Dream Foundation 

Epilepsy Alliance of Florida 

Feeding South Florida 

FIU, Robert Stempel College of Public Health & Social Work 

FORCE, Facing Our Risk of Cancer Empowered 

Gilda's Club South Florida 

Go2 For Lung Cancer 

Holy Cross Hospital

Kids of Love

Komen Florida 

La Liga Contra el Cancer 

Leukemia and Lymphoma Society 

Lungevity 

Memorial Healthcare System 

Moffitt Cancer Center 

Mujeres Latinas 

My Faulty Gene 

National Comprehensive Cancer Network 

Nicklaus Children’s Hospital 

Nova Southeastern University 

Pink Angels 

Planned Parenthood 

Save Our Sisters DBT, inc. 

Sharsheret

Tigerlily Foundation 

Tobacco Free Partnership of Broward County 

Today’s Caregiver Magazine 

Triage Center 

University of Florida Health Cancer Center 

University of Miami Sylvester Comprehensive Cancer Center 

U.S. Department of Veterans Affairs

YMCA of South Florida 

Yodeah

Rep. Wasserman Schultz’s Office 

MEMORIAL HEALTHCARE SYSTEM, PRIMARY CARE MOBILE HEALTH CENTER

The Memorial Healthcare System Primary Care Mobile Health Center provides free healthcare services to uninsured adults residing in South Broward Hospital District. The Mobile Health Center provides the following services: COVID-19 Vaccines, general medical exams, screening, and sick visits, prevention screening examinations, general medical exams, and video telehealth appointments available for sick patients. For more information, please visit:

https://www.mhs.net/locations/memorial-mobile-health-center

 

UNIVERSITY OF MIAMI SYLVESTER COMPREHENSIVE CANCER CENTER, GAME CHANGER VAN

Sylvester launched its Game Changer community vehicles to bring cancer screenings and health information to underserved communities in South Florida. For more information, please visit:

https://umiamihealth.org/en/sylvester-comprehensive-cancer-center/research/community-outreach-activity/game-changer-vehicles

 

UNIVERSITY OF MIAMI SYLVESTER COMPREHENSIVE CANCER CENTER, FIREFIGHTER CANCER INITIATIVE (FCI) MOBILE CLINIC

The Firefighter Cancer Initiative (FCI) Mobile Clinic provides high-quality, patient-centric care to firefighters on-site at local fire departments. Individualized appointments focus on comprehensive health screenings for prevention and early detection of cancer. Their dedicated medical staff is trained to address active and retired firefighters’ unique needs. Screenings will include, but are not limited to, breast, cervical, colorectal, esophageal, lung, prostate, thyroid, and skin cancers. For more information, please visit:

https://umiamihealth.org/en/sylvester-comprehensive-cancer-center/research/firefighter-cancer-initiative

 

BROWARD COMMUNITY & FAMILY HEALTHCARE CENTER (BCOMM), MOBILE UNIT

BCOMM’s Mobile Unit goes out to the community at large in Broward County and provides services like health education, blood pressure check, glucose screening, and HIV testing. They serve everyone in general while focusing on those with no or insufficient health coverage. For more information, please visit:

www.BCOMMHealth.org